COEUR D’ALENE, Idaho – A North Idaho mother is on a mission to raise awareness about a rare genetic and neurological disorder after her young son’s battle with it came to a heartbreaking end.
Anjee Wavrick and her husband faced an unimaginable journey when their son, Connor, was diagnosed with Krabbe disease.
Around the age of two, Anjee noticed Connor wasn’t as active as other kids his age. At one point, he even started limping.
Connor began physical therapy, but weeks later, Anjee said he collapsed.
Genetic testing led to a diagnosis of Krabbe disease in June 2024.
As the disease progressed, Connor lost the ability to walk.
Connor received a bone marrow transplant at Seattle Children’s Hospital but struggled with the procedure.
Anjee had to make the difficult decision to place him in hospice care.
“This is the decision that is best for Connor, but it was just so backwards to what a mom is supposed to do,” Anjee Wavrick said. “Cause moms are supposed to keep their child alive. We’re supposed to do everything to preserve life, and the fact that I wasn’t able to do that – it hurts. It still hurts.”
Connor passed away in February of 2025.
Now, Anjee is determined to spread awareness about Krabbe disease.
She is organizing a fundraiser this August to support research on the condition.
Readers interested in supporting Anjee’s cause can find more information about the upcoming fundraiser in the photo below.
